About the Book
So you've been told that your new baby has a medical condition called Pierre-Robin Sequence. OK. I know you’re scared right now, because I’ve been there. Finding helpful information online was almost impossible, which only made it scarier. That’s I why I wrote this book.
Within, you’ll find many of the questions we searched for answers to when our son was first diagnosed – how will this affect his development? What difficulties will we have with feeding? What treatment options are there? How will his time in NICU affect him long term? With research drawn from more than 160 medical sources, dozens of photos, experiences contributed by more than 25 PRS families, and my own personal journal entries from birth to NICU and beyond, this is a guide to PRS written for parents, by a parent.
* This 2nd edition has been edited to remove some of the original photos and shorten the original interviews/journal entries in order to make it more affordable and accessible.
FEEDBACK FROM PRS FAMILIES
If you just found out your newborn has PRS, read this book! It provides an extensive and thorough understanding of PRS without being overwhelming, while also providing relatable insight into the experiences you may have as a parent of a newborn with PRS while the NICU. This helpful guide is written by a mother who has lived it herself, and wants to help others by providing an easy to read educational tool. I absolutely wish I had something like this book for support and guidance when I was in the NICU with my PRS newborn!
- Shannon, PRS mom, USA
Features & Details
Hi, I’m Jess, and I write. I write about food & travel because I love documenting our world and its cultures. I write short fiction to have a bit of fun and experiment. And I write about my own lived experiences to help open honest dialogues about the hard stuff, because we’re all in this together.