A tale in words and images about trisomy 9 mosaicism
by Emiliano Cribari Martina Biagi
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About the Book
What does it mean to be the parent of a child affected by a rare disease? How does one live with the uncertainty, with the silence of science, with the awareness of being alone? Through a journey, both personal and photographic, “I Am” asks questions, while meeting with eight Italian families with children affected by trisomy 9 mosaicism, a rare illness with eleven known cases in our country. A chorus of voices demanding an identity.